Consultants throw cold water on USA doctor's 'magic potion' for Charlie Gard

Henrietta Strickland
Июля 17, 2017

Michio Hirano, a professor of neurology at the Columbia University Medical Centre in NY, is scheduled to examine Charlie for the first time before discussing his condition with Great Ormond Street doctors and other medical experts.

An American doctor who will determine whether Charlie Gard, an 11-month old boy with a rare genetic disorder, should be brought to the U.S for treatment met with the United Kingdom medical team treating him.

The New York-based neurologist claims there is a 10 per cent chance that his experimental treatment could improve muscle strength and bring a "small but significant" improvement to Charlie's brain function.

The trial therapy would be delivered by Dr Michi Hirano, a professor of neurology at the Columbia University Medical Center, who gave evidence to the court on Thursday.

The child is effectively being taken prisoner by the NHS and by the state.

A judge overseeing the latest stage of litigation has agreed that Ms Yates can be present when experts meet to discuss Charlie's condition.

Charlie's parents, Chris Gard and Connie Yates, have raised £1.3 million (US$ 1.7 million) to take the baby to the USA for nucleoside therapy.

They say life support treatment should stop.

The Great Ormond Street Hospital told the court their position remains unchanged, that every medical treatment option had already been explored, and that any experimental treatment would be unjustified.

At the end of June, the European Court of Human Rights rejected an appeal by Charlie's parents that he be allowed to undergo the experimental treatment in the U.S., following a similar ruling by the UK's supreme court.

But last week, the case returned to the High Court after the hospital asked for a new hearing to consider new evidence from Hirano.

The European Court of Human Rights also decided not to intervene in the case. The hospital says Charlie should be allowed to die with dignity.

The hospital added it had treated more than 1,000 patients with mitochondrial disease and offered pioneering treatment, including nucleoside treatment, where appropriate.

Connie and Charlie's dad Chris, of Bedfont, West London, want a judge to rule the 11-month-old can have experimental treatment in the US.

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